Parent & Caregiver Resources - Patti's Place: Vital Pediatrics for Complex Kids, LLC | Dr. Patricia Shearer
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Phone: 404-986-8756 | Fax: 404-986-0803

Parent & Caregiver Resources

What is Pediatric Palliative Care, Really?

Learn more about pediatric palliative care by watching the video provided below.


Online Resources

The following websites are recommended by Dr. Patti as resources for parents and caregivers.

  • American Academy of Hospice and Palliative Medicine
    AAHPM is the professional organization for physicians specializing in hospice and palliative medicine, nurses, and other healthcare providers.
    Visit the AAHPM website at www.aahpm.org.
  • Georgia Hospice & Palliative Care Organization
    GHPCO promotes quality hospice and palliative care throughout Georgia by providing information, education, and advocacy
    Visit the GHPCO website at www.ghpco.org.
  • The International Children's Palliative Care Network
    The ICPCN's mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children's palliative care, lobbying for the global development of children's palliative care services, and sharing expertise, skills and knowledge.
    Visit the ICPCN website at www.icpcn.org.
  • Passport for Care
    The Passport for Care is a free online resource tool for survivors of childhood cancer (including patients who received a bone marrow transplant). The Passport for Care allows survivors to easily access their treatment summary and long-term follow-up care recommendations.
    Visit the Passport for Care website at www.passportforcare.org.
  • Wellstar Health System
    About Wellstar: "Our patients are the center of everything we do. We're nationally ranked and locally recognized for our high-quality care, inclusive culture, exceptional doctors and caregivers, and one of the largest and most integrated healthcare systems in Georgia".
    Visit Wellstar's website at www.wellstar.org.

Support

  • Courageous Parents Network
    Courageous Parents Network is a non-profit organization and educational platform that orients, empowers and accompanies families and providers caring for children with serious illness.
    Visit the CPN website at www.courageousparentsnetwork.org.
  • FOCUS
    FOCUS is a 501(c) 3 organization that embraces and equips families of children with disabilities to make everyday life better. Children participating in FOCUS range in age from birth through 29 years old and have varied physical and/or developmental disabilities, including rare genetic syndromes, cerebral palsy, autism, and Down syndrome. FOCUS families are racially and ethnically diverse and share the common bond of having children with significant health challenges in their lives.
    Visit the FOCUS website at focus-ga.org/.
  • The Songs of Love Foundation
    The Songs of Love Foundation is a national nonprofit 501(c)(3) organization that creates free, personalized, original songs to uplift children and teens currently facing tough medical, physical or emotional challenges.
    Visit the Songs of Love website at www.SongsOfLove.org.

Informational Documents